Try to make the circle as big as you can and move both shoulders at the same time. Try to get a lymphadema clinic referral as knowing the correct way to massage the lymph system is very important. Educational text answers on HealthTap are not intended for individual diagnosis, treatment or prescription. Regular massage, especially deep tissue, can be harmful. Thank you. Follow your instincts and if your doctor isn't responsive enough, keep looking for one who will attend to your health needs. If I had a bulge now I look at the lymphatic system. Thanks for listening. I just googled abdominal lymphedema after breast cancer and yes, I'm sure that is what I have, and many others also have. I had sentinel lymph nodes taken then and later all nodes in R arm. A coordinator will follow up to see if Mayo Clinic is right for you. However, for some individuals, it may take months. Nette, thank you so much for that - I'll certainly get it checked out. Surprised how many women are experiencing abdominal bloating. (I dont like regular lymphedema compression sleeves but I do like Solidea brand items, which my therapist recommended.) After eight years in the system and with an excellent BCN I would always use her as my first port of call. My bowel habits have returned to normal, but I also have torso bloat/swelling that is quite uncomfortable. My belly seemed almost as big as my boobs were (and that's not small). @kk57 has shared something she is doing that seems to be helping. Go to the Breast Cancer Support Group. Have a lovely Sunday and again thanks for your reply. All Rights Reserved. Many of those women wonder what to expect post-mastectomy. Mine was the result of abdominal reconstruction taken from my tummy and tunnelled up to my breast. That pain will subside. Do I now walk around in constant discomfort, looking 4 months pregnant? After time, you will gain back that range of motion assisted by exercise. Because of this, you may want to ask a loved one to help you out with some of your day-to-day activities as you recover. I am due to have my seroma surgical removed on Tuesday 22 July. Gone up several sizes despite losing weight. Interested in more discussions like this? Most have been trained on the job by a mentor some actually have had themselves a mastectomy or lumpectomy for even better first hand advise the m How long will i have tightness and swelling after double mastectomy? She had me purchase an abdominal binder which I wear only during the day. Connect with thousands of patients and caregivers for support and answers. Very long story short I developed lymphedema out of the gate following surgery in my left arm. I am glad to hear about the MLD and will ask my oncologist to refer me. Those are your signs to call your doctor for further instructions. Did they do anything to reduce the seroma? If the mastectomy also took lymph nodes out of the armpit, the arm will always have a tendency to swell. Its also common to feel a bit nauseous from the anesthesia. I started physical therapy 2 weeks ago and the physical therapist could tell right away that it was fluid. Although I have been told the common reply from my surgeon and family Dr. that I just didn't see it before because my breasts were there, that is total B.S. For these, please consult a doctor (virtually or in person). Breast cancer survivor bilateral mastectomy sentinel node removed on cancerous side now have arm and trunk swelling on non affected side is this norm? Up till then I was completely fobbed off. I had my mastectomy last December - no recon - and since then, my stomach on mx side looks like I'm pregnant too. Since I cannot blame this on lack of exercise, constipation, cancer spread, etc., I guess I will be patient and wait for the medication to work itself out of my system to see if things improve! If you feel tightness across your incision or chest, start with smaller circles. Swelling Because of the overall healing response of multiple surgical sites, swelling is normal and expected of the breasts and the abdomen after surgery. Has the lymphedema subsided? I am so relieved that I have found this group and that I am not alone with this problem! I have recently found recorded medical lectures on You Tube that I have found helpful. However, its more swollen on one side and I am experiencing pain. One concern you may have is when you can go about daily activities, like household chores and running errands. We spent extra time with our doctors asking questions to help us understand what we were getting into. I have not had reconstruction yet and it has been a year. I had surgery Feb. 27, 2019 and had abdominal swelling. When you get home from the hospital, your movements and range of motion will be more limited. Answer: 1-2 weeks. Is it all connected? Good Luck everyone and a swift recovery. I hope I have give you some ideas. I am a year out of a bilateral mastectomy with no reconstruction and seem to have developed a lot of belly fat and am taking a anastrozole. I just googled abdominal lymphedema and yes, it is a thing, and yes, that is what I have and I'm sure many others with "Buddha belly" have. Studies have shown that between 20% and 30% of women develop symptoms of PMPS after surgery. Keep in mind that the exact timelines can vary based on the type of procedure you have, as well as your overall health. Its vital that you continue to do these arm and shoulder exercises regularly as you recover. Also thats my intestines running free.. surely thats not a good thing in terms of bodily function?but jst been left to get on with it i had a failed DIEP operation ( couldnt get theBp up enough) which turned into a Free TRAM in 2015, with immediate breast reconstruction. If you had a mastectomy without breast reconstruction, youll be given a prosthesis to wear. Backward shoulder rolls. So, yes, I have lymphedema and the massage moved a lot of fluid out. Its also possible for numbness to be persistent or chronic. The problem is called standing cone with probably a seroma in it. I have read some great info though! I was very concerned about lymphedema because I was trying to resolve my risks. During this time, theyll evaluate your progress, discuss any additional treatments (if needed), and address any concerns you may have. As a retired RN the abdominal bloating made no sense at all. Surprised how many women are experiencing abdominal bloating. Any ideas? However, there are those times where I need to say, If it was me, I would do. Talk openly with others about what youre experiencing. As a matter of fact, I have found two phlebotomists that will honor this. Thanks again. Exercise is a major key to recovery, in my opinion, and for me that has brought many unexpected benefits. In addition to general pain or discomfort, its possible to feel: Chronic pain after a mastectomy may be more common in people who: There are many potential treatments for chronic pain after mastectomy. When you open up your body, youre leaving yourself exposed. I am not fat just looks like a have a basketball under my shirt. Go to the Breast Cancer Support Group. A belly binder may just bind the area and not let the lymphs move along. It may take time to regain that muscle strength. I can tell this is very bothersome to", "Thanks for the info, but it's definitely not a regular "bloating" or digestion problem. Most of the people faces problem after surgeries but then you must be really cautious about all these problems. If anyone has a rave review of someone who does MLD", "Thank you! It's not", "I had surgery Feb. 27, 2019 and had abdominal swelling. @almostoutofthewoods There are different lymphedema pads called "swell spots" that are quite helpful. He's focused on getting the cancer out. It is common however to become easi. My care team says they have never seen this but obviously others have had it. Possible problems after mastectomy. I had a bi lateral mastectomy five years ago and only one lymph node removed on my left and two on my right (where the invasive cancer was). I noticed I have a bloated stomach when I washed myself up. Connect with thousands of patients and caregivers for support and answers. Most surgeons seem to feel that the area settles more quickly if it is left to absorb into the surrounding tissues naturally. Im currently three years post-mastectomy and reconstruction surgery. Its okay to feel angry and upset at the world for a while. Ugh. So, yes, I have lymphedema and the massage moved a lot of fluid out. Can a Mastectomy and Breast Reconstruction Be Performed at the Same Time? You can learn more about how we ensure our content is accurate and current by reading our. Same response as with the other reply here I saw. Mastectomy lymphnodes 15 years ago. Life is full and good post cancer and treatment. I find that trawling the Internet expeciallythe US sites can throw up some useful information but you do need to read it with care. What were your test results? Copyright 2000-2022 Cancer Survivors Network. Once the fluid was aspirated, it almost immediately felt a lot better. Take care, Lola. but good woman that she is followed it up by "I'm just joking". There's no way to completely predict or prevent breast cancer. All the best to you. Keep a close, very close eye on any cuts (even the smallest). So my bulge has added about 20cm to my circumference which is really pronounced when moving from laying to sitting - it looks like one side is flat and the other raises up like its own separate pregnancy! Also given the line that it just looks bigger because you have no breasts. I am so thankful you found a therapist who has helped you. My seroma was only diagnosed after a scan. today I am 10 weeks out from my DIEP surgery. Also, try walking to help. Instead have been doing core exercises and strength training from the Physical Therapy Dept at our facility. I was hospitalized for 6 days and have permanant damage to my left hand that will never improve. 1) Observation and better selection of a bra-mastectomy shop is /dissection was not done (?) Thanks, @amandajro, but agree with @almostoutofthewoods this isnt gastrointestinal bloating which this article addresses. I've read that some antibiotics can kill the natural bacteria that the body needs to help process food as it passes through the system. things that can help you while showering or bathing, including: items to help with surgical drains (if you have them), such as: a drain lanyard for the shower, which can help to keep surgical drains from dangling, a mastectomy drain apron or jacket, which has pockets designed to secure surgical drains, comfortable pants, such as yoga or lounge pants, shirts that fit loosely and that can button or zip in the front, something to keep you entertained in your hospital room, such as a book, magazine, or tablet. What are the symptoms of complications after mastectomy? When can I resume my normal activities after a mastectomy? I haven't been horrendously uncomfortable most of the time. Belly bloatHi Shirley - I too had my surgery last Thursday - a bilateral mastectomy. I then researched seroma after abdominal surgery and I found its a fairly common side effect. I found a certified lymphedema therapist and I will make an appointment. Repeat this movement 5 times. This feels", "@kk57 See if you can get a referral to a physical therapist who addresses lymphatic massage.". None of my clothes fit me and I know I haven't suddenly put on so much weight to make me look 6 months pregnant! * To protect your identity do not use your full name. Then she went out and got me fruits and a big salad to push the greens. Eighteen ways to reduce bloating: Some examples of potential treatments include: During your recovery period, you may feel numbness around the site of your mastectomy. And contact the incontinence nurse for help with retaining the control I have. Now it does! Hopefully the burping and passing gas is the beginning of your relief and your bowels will follow. Her comment was "Mom maybe you just didn't notice how big your belly was when your boobs were hanging down over it." Its most often felt in the areas of the chest wall, armpit, or arm. I woke up from the first surgery with it. I also experienced a great deal of swelling. My health carrier is Kaiser Permanente and prior to any surgeries, they have patients attend classes guided by physical therapists. A belly binder may just bind the area and not let the lymphs move along. This feeling is due to nerve damage that can happen during the surgery. Did you have your lymphedema evaluation? How long was your tummy swollen for? Medical procedures always scare me now. 1. How are you doing? I found the breast nurses the most useful and approachable. Spivey TL, et al. Has anyone else had this? All Rights Reserved. My lymphedema is mild because I avoid triggers, practice MLD, have a Flexitouch pump system to use as needed, know what physical exercises to do to help, know how to short-stretch bandage if necessary, and finally wear a compression sleeve during exercise or exertion. I do not get my blood drawn at the cancer center nor the hospital associated with it. Can Breast Cancer Be Detected in a Complete Blood Count (CBC)? However, the surgeon got a little ambitious and created a lot of damage on my left side to remove the node. Healthline Media does not provide medical advice, diagnosis, or treatment. If it's just mild swelling, sometime it is just due to bloated intestines.If the gastrectomy was several weeks or months ago, the considerations include ascites (abdominal fluid), a hernia, versus tumor regrowth.Talk with your surgeon to learn more. The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. Complete your request online or contact us by phone. 1998-2023 Mayo Foundation for Medical Education and Resreach. Please support The Breast Cancer Site by adding us to your ad blockers whitelist ads help us to support those fighting Breast Cancer. I was vigilant but in the end I had no idea how bad my lymphedema was or what risk I was really at for this. on the non affected side. Like a bowling ball. I had stage 1, no lymph nodes removed. I am a year out of a double mastectomy and seem to develop a lot of upper belly fat. (2020). Arm swelling most often is from lymphedema which can be evaluated and treated by a trained specialist. Any use of this site constitutes your agreement to the Terms of Use and Privacy Policy and Conditions of Use linked below. I too had 'mild' lymphedema.now I have hand and arm damage and it's not so mild. You can do research about them on Google to understand how they work. Sooo frustrating. Kaiser also offers their patients an "after breast surgery" training class by the physical therapy department whereupon one does a series of stretching, core, weight training (stretch bands and free weights), and then finishing with stretching exercises. Please allow me to post it for you. When you can start driving again typically depends on how you feel during recovery. A low-grade fever that is under 100 degrees Fahrenheit is normal the day after surgery. FYI @almostoutofthewoods. Also, some elastic type shorts that come up to belly button and that have a wide elastic band for waist. I am getting bilateral mastectomy/breast reconstruction (after finding out I have a genetic mutation) next month and am scared to death about my hospital experience. But I am pretty careful about gas as it certainly can add pain to the equation. @kk57 See if you can get a referral to a physical therapist who addresses lymphatic massage. I was given a PT referral for lymphedema evaluation. I woke up from the first surgery with it. Re: Abdominal swelling after surgery - has anyone else had this? The swelling is in the left breast and side, naturally, but also in the groin area, upper and lower abdomen, and across my back by my shoulder blades. @aiden727 Once the month-long class is completed, as patients we do those twice weekly at home and for me it takes about 30 minutes. I couldn't believe the bloat I had. YES, we discussed loss of feeling and sensation in my breasts and armpits. I bought the 9" abdominal binder from the medical store called Aids for Recovery. However, there are many ways you can set yourself up for an easier recovery. PMPS is thought to be linked to damage done to the nerves in the armpit and chest during surgery. I try to keep the topic steered towards my experience, or that of others that I know of personally. Im going to email my surgeons with all those questions you dont ask at the time ! Over those three years I have talked to numerous women who have sought out my knowledge in hopes that their questions could be answered, or that I might have added insight that their doctors failed to relay to them. I'm 48 and apparently not peri-menopausal. They are not keen to remove the fluid unless it is essential, as it tends to build up again quite quickly. Now it does! Please keep in touch and let us know how you get on. This is such a common problem after a mastectomy that I would think doctors would admit that it is a problem and address it. Losing a breast is difficult in itself, but having issues with your new physical image is just as hard. does it eventually go down? I had bilateral mastectomy last week, November 3, 2021. Hello. Might be worth discussing with hospital team and GP? which swelled occasionally but disapated in a day or 2. now i have had pouch swelling fo? Publication types Case Reports Review MeSH terms Abdominal Wall / innervation Abdominal Wall / physiopathology* Humans That was two years ago and I never did the belly binder. and feel so much better Thank you. I think paranoid hyperchondriac is a pretty good label for me right now! and the surgeon blew me off. @carr You May ask why if it is common why it wasnt immediately diagnosed. I did not know about this. The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. You should go to a certified lymphedema therapist, or CLT. I have read some cases where bilateral mastectomy gets the lymphatic system out of balance. You have a foreign object inside your body, which may just want to reject that object. All Rights Reserved. Did you get a response? I had a level one clearance with my lumpectomy and, there was an attempt to take a minimal number of lymph nodes from the arm that hadn't had surgery previously along with my mastectomies. Also given the line that it just looks bigger because you have no breasts. I am one of the lucky ones. Please contact your surgeon or breast nurse. What are the side-effects they need to be aware of? Some individuals may develop chronic pain following a mastectomy. For some people, this may be about 10 days after surgery. Thank you all so much. Generally speaking, you may be OK to drive if youre able to make an emergency stop without causing pain or discomfort at the mastectomy site. Its lymphatic, not gastrointestinal. Yes, it could be a possible seroma or hematoma. My prophylactic, bilateral mastectomy with immediate reconstructionwith implants, has developed severe swelling on left side. Do you think I would benefit from a chest and abdominal binder? I also had my lymph node checked on my left side. Know that, although it may take some time, youll eventually start to feel better. Immediately after your mastectomy, youll be moved into the recovery room at the hospital. Can you get breast cancer after mastectomy. Connect with a U.S. board-certified doctor by text or video anytime, anywhere. That is great informationI'm going to check into belly binder. Still having regular bowel movements and there is really no pain. It amy require treatment with Dr. Pamela Pappas and another doctor agree. Thanks! Melatonin and Breast Cancer: Is it Safe and Can it Help? After you wake up from the anesthesia, you may notice that you have: Youll be given pain medication to help ease discomfort. Prophylactic mastectomy is surgery to remove breast tissue. The swell spots are sewn in a way for the lymph veins go move the lymphatics along. Lung Cancer Surgery Recovery Time: How Long Does It Take? In some cases, numbness may be temporary and fade over time as you heal, although your surgical scar itself will often remain permanently numb. I wake up not as bloated then as the day goes on, whether I eat or not, the belly bloats. Connection & Conversation: Open for the holidays. 20002023 The Breast Cancer Site and GreaterGood. How long would naproxen take to work for me? FYI @almostoutofthewoods. It was a perk of why I chose it, and I have. All, I am 5 weeks post double MX and have the belly swelling you describe. Surprised how many women are experiencing abdominal bloating. I really hope you find it! Funny how simple but just needed to hear someone else say go get it checked!, Why would you not wont to go back to your doctor?It could be a seroma. Thank you for the information and I will be asking my doctor about it cuz I go on Monday and I will make sure that I talk to her and see what I need to do to alleviate this symptom that they didn't tell me I would have thank you again so much and I'll be praying that anybody that read this do same and be rid of it for once and for all. She did Manual Lymphatic Drainage (MLD). I understand they are focused on saving our lives but discounting our side effects is really disheartening. Compression garments such as a compression bra, shape wear or an abdominal binder can help reduce swelling. I know part of it is my posture and I am seeing a PT to pull my shoulders back and strengthen my core. I can tell this is very bothersome to you, as I can understand. If the procedure involves the formation of the lower breast pocket, the swelling may not be limited to the breasts. Connect with thousands of patients and caregivers for support, practical information, and answers. She probably shouldn't experience any swelling if the skin has been placed down flat by the surgeon. "I had a double mastectomy with no reconstruction about 3.5 years ago. i have a huge swelling around my implant breast (mascetomy surgery) and i pulled myself at work. I've just had a CT scan. Also given the line that "it just looks bigger because you have no breasts". "Surprised how many women are experiencing abdominal bloating. I had no reconstruction and try to go to gym and walk 3 times a week but doesnt seem to help. Complete your request online or contact us by phone. Dr. David Earle answered General Surgery 32 years experience Variable: While everyone is different, the wounds and healin process should be about 90% complete in the 6-8 week timeframe. I know they cut all of the muscles and nerves and they never recover completely. Now I will insist on therapy for abdomen as well as arms. I started to post the video after reading your comment, impulsive? I had a CT scan yesterday. I was only Stage 1 and the doctors were fairly certain I didn't have spread to my lymph nodes. It's done to reduce the risk of cancer in people with a high risk of developing breast, Healthline has strict sourcing guidelines and relies on peer-reviewed studies, academic research institutions, and medical associations. Stomach bloating is generally related to several different factors. Still having regular bowel movements and there is really no pain. Not standard mastectomy. The hospital and my surgeon said", "I have mild lymphedema in one arm after a bilateral mastectomy where seventeen lymph nodes were", "@chamisa See my post below. Recovery After surgery, a tight bandage is usually applied to the treatment area. When breast cancer is present, surgeons will take a few lymph nodes (if not more) to determine the stage and spread of cancer. I don't suppose that this has helped you a lot but I hope it has maybe pointed you in a direction that will help you to find a way out yourself. I had a modified radical mastectomy, chemo and radiation in 1996-1997. , Well my results turned out different I went for a colonoscopy and an endoscopy today and my doctor said that I could possibly have a hiatal hernia I will be able to confirm it Monday because I'm having a CT scan with contrast and they're supposed to let me know something but so far that's what they say my bump is I pray everybody figures out what theirs is. What Causes Stomach Bloating After Breast Augmentation Surgery? There is a brief period where new members can't post links. Prior to your procedure, reach out to loved ones to ask if they can help you with things like: Put together a bag to bring with you to the hospital. It was part of the reason I had an ER visit post op. For me, the BC nightmare never ends. Lymphadema is a very distressing problem. How to Reduce Your Risk of Breast Cancer: 10 Lifestyle Recommendations, Symptoms of Late Stage Metastatic Breast Cancer, What to Know and Consider Before Having Prophylactic Mastectomy, a dressing or bandage to cover your incision and keep it clean, a surgical drain to help blood and fluid drain from the surgical site, how to care for your incision, including how to bathe or shower, which exercises to do to promote range of motion in your arm and shoulder and how often to do them, what you may expect as far as pain, numbness, or other sensations, how to recognize signs of complications, like infections or lymphedema, when you can start doing certain activities again, such as household chores, driving, and wearing a bra, experienced acute, severe postmastectomy pain, bleeding from the surgical site thats more than you were told to expect, redness, swelling, or pain around your incision, an area thats red, tender, or feels warm to the touch, unexplained swelling around the surgical site, which could be signs of a, persistent swelling in your arm or hand, which can be a sign of, a notebook for tracking medications or for writing down questions to ask your surgeon during your follow-up appointment, a wedge pillow to help keep you propped up in bed or on the couch. Great news but now2 months out I still cant wear my clothes. I'm afraid that I've turned a bit psycho since my diagnosis and was fairly sure my bulge was either pancreatic or peritoneal cancer tumours. If people got proper training, they would know about lymphedema and be able to give proper treatment. I felt lucky about their cancer assessment, but I couldn't get the information or education for lymphedema I requested. You have had a post op ct so if it was a seroma they should have been able to see the fluid. Now lets explore when you may be able to restart certain activities after your mastectomy. I am not a medic so dont know. Any ideas why the arm swell, or become edematous, after a radial mastectomy? 1998-2023 Mayo Foundation for Medical Education and Resreach. Your lymph nodes help filter out harmful substances. I also wanted to say that it feels like soup one minute and a rugby ball the next ( its also that size!) Anyone seeing me would assume that I am six months pregnant. Dr. Harness comments on the degree of swelling a woman should expect after her double mastectomy. Hi Delight, welcome. Recovery from a mastectomy typically takes several weeks. So is that it? Your surgeon will talk with you about when this may be possible. Interested in more discussions like this? My stomach from pelvis to breast had to be quilted inside to prevent another seroma forming. If you belong to a medical group, they may be able to recommend a physical therapist, but you do want someone knowledgeable in lymph massage. They were wrong (and @trixie1313 ) I too have Kaiser and I wish my care had been as complete as yours.sigh. Take your time, but dont ignore the muscles. This was at a cancer center that was connected to a hospital that had a trauma center! My surgeon advised against more ops as he felt It could cause more probs down the line He also said we are just seeing the true complications of TRAM surgery. No evidence of any liquid to drain out. Was told it would get better. Had breast op 4 weeks ago, and I've been putting the tummy bloat down to all the things already mentioned - painkillers, lack of movement, the fact that my boobs aren't blocking the view, etc etc. It is 9 days since mastectomy I am very swollen and bruised and swollen particularly under my arm. You should be off narcotic pain medication before driving again. Its a long post but there just seems to be so little info available that I wanted to share. I am not fat just looks like a have a basketball under my shirt. My seroma was only found after I had a full body scan when a primary was found in my second breast. Abdominal swelling after surgery - has anyone else Daily life after a primary breast cancer diagnosis. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect. Last Thursday, I had a Simple Mastectomy . Sorry for any confusion. It may also be difficult to sleep flat for a while. Please note, we cannot prescribe controlled substances, diet pills, antipsychotics, or other abusable medications. for the first couple of days I could actually hear the fluid moving around, but this has stopped now. could it be fluid? She was happy with everything. Like Helpful Hug I have mild lymphedema in one arm after a bilateral mastectomy where seventeen lymph nodes were removed. Its not just discomfort- as we all know how uncomfortable the tightness can be! This can include: Its very important to carefully follow all of these instructions after you return home. Doctors typically provide answers within 24 hours. The one constant in my treatment has been walking it is free and the very best exercise. There was nothing wrong with my tummy before this op!! (2020). If this is the case, get instructions from your surgeon on how to care for your surgical drains at home. I did find this information which may be helpful to see if there are things in your day-to-day that you can add or modify to support reducing bloating. My abdominal swelling was caused by reconstruction where they lifted the skin from lower belly to boob. However, some breast cancer patients will be shocked to feel brief bouts of sharp pain in their breast months, even years later. I'm not tiny but I've never had such a big upper tummy! I had left mastectomy and few lymph nodesleft side bloating/swelling4 months post op. I am also on the Wheat Belly diet, which is similar to Ketono wheat or grains, no sugar, good fats and vegetables, etc. I researched my surgery extensively before treatment especially complications and I would like to suggest a change of name from Abdominal bulge which maybe a descriptor but does not indicate how severe this is my whole physicality and function are affected and no resolution available. I hope that your recuperation continues to progress. Our experts continually monitor the health and wellness space, and we update our articles when new information becomes available. Six years later I have a perfectly flat stomach but can still feel a pull. Another health carrier, Sutter, also offers classes and I found their lymphedema class was even more educational. My left ankle has been swelling in hot weather but is not swollen this morning. Learn the signs and symptoms of metastasis, how you can make yourself as comfortable as possible, and tips for managing end-of-life symptoms. Chronic pain after mastectomy happens due to nerve damage. I've lost 2 inches off each thigh and can't keep my trousers up, but my upper tummy just stays distended. Did you have your lymphedema evaluation? Its likely that youll start out with gentle, low impact exercise and slowly increase in intensity. It's most common after operations that remove tissue in the upper outside portion of the breast or the underarm area. thanks for replying , it is a great idea and despite buying highly expensive support pants Ive found a swimming costume helps a lot - seems to even the load all out! Support those fighting Breast Cancer at The Breast Cancer Site for free! But I am glad I found this forum and got information about what I am possibly having. Here's what you. I have no answer but mine was a seroma and had to be surgically remove as it was left so long. To learn more, please visit our. If anyone has a rave review of someone who does MLD (manual lymphatic drainage) in Minneapolis, please share. If you happened to start the reconstruction process with expanders, or even once you put implants in, infection can still happen. I'm in crazy California (northern) and have Kaiser Permanente. Because of this, its unlikely that youll have to return to the hospital or a doctors office to have them removed. I let the doctors convince me that I shouldn't worry about lymphedema and here I am fighting this battle while I'm also about to hear that I have hit the 5 year mark cancer free (a very good bit of news). I am now on a very strict program of PT, massage, and bandaging to keep the lymphedema under control. Thanks for the info, but it's definitely not a regular "bloating" or digestion problem. This morning I noticed swelling in upper left abdomen. By signing up, you agree to our Privacy Policy. About a month after the August surgery my belly became hard and bloated. Our website services, content, and products are for informational purposes only. My dx is Colon Cancer w/ liver mets - 8 tumors spread throughout liver so resection of liver not an option, nor is transplant. No swelling in my extremities. This is great info. Lots of swelling but few if any, caused by pedicle tram recon. Regular massage, especially deep tissue, can be harmful. Most people who have a mastectomy only need a short hospital say. That is great informationI'm going to check into belly binder. @trixie1313 yes, am pursuing that. My mom is experiencing the same thing - visible abdominal distension, that has persisted almost 5 weeks after her surgery. I was in excellent physical shape when I underwent my hysterectomy (Not to brag, but I actually had a six-pack!). I had a double mastectomy with no reconstruction about 3.5 years ago. If you have breast reconstruction during the same surgery, you may have a longer hospital stay, up to a week. I am large busted and the gravity pulls it down. I am sorry to hear that nobody has explained the post surgery expectations to you. Yes, on a rare occasion I have gas, but that isn't the problem, since it always stays the same even when I have gas and I take care of that problem. I had my op on both breasts on the Thursday and my drains were taken out on the Saturday. There is often variability between patients, but with Naproxen, one could expect to experience some This is particularly true with women who have had a mastectomy. Its not uncommon to take several weeks off from work while recovering from surgery both physically and emotionally. Usually drains will help to minimize this but not completely prevent it. An abdominal CT was normal. Its lymphatic, not gastrointestinal. Tell your doctor right away if you have any signs of infection. All rights reserved. I woud look at your lymph system as the areas you have highlighted sound like the main lymph drainage areas. At age 65, I am 11 days post op after a simple left breast mastectomy. "Thank you, @carr. Good luck and persevere it is your body and you that needs to live with it. Some of those nerve ending may regenerate themselves; but for the majority of women, the end result is a lack of sensation. I have very skinny legs and arms, but this huge stomach bulging out!!! I try to get walking in and gym but doesnt seem to help. I had surgery Feb. 27, 2019 and had abdominal swelling. As such, you may want to look for a comfortable, but supportive, chair to sleep in during the early stages of your recovery. Yet another thing to add to the list of 'why don't they forewarn you about these things'?? @carr As always, I stress that I am by no means an expert in this area. Its lymphatic, not gastrointestinal. Keep a close, very close eye on any cuts (even the". A coordinator will follow up to see if Mayo Clinic is right for you. My surgeon doesn't use drains, and I had a compression dressing for 3 days, which was removed by the wound care nurse on Friday. Drain was removed on day six, and I have been taking my normal walk each day since day 7 (3-4 miles each day). When those nodes are removed, Lymphedema may occur. When you return to work can also depend on the type of work you do. I think whats difficult for me is mainly -the impact of this on daily living, theres ongoing pain, the immediate need to go to the loo and the not knowing if I am gonna keep growing.. which seems minor when everyone is going through so much and fighting to beat cancer. Reconstructive surgery can be performed at the same time as your mastectomy surgery. This can happen if you have a more extensive procedure, such as a radical mastectomy or if you have breast reconstruction during your mastectomy. They just say that because muscle has been removed from my abdomen, the abdominal wall is very thin, so there is not much support. It often happens in the arms or legs, but can also happen in the face, neck, trunk, abdomen (belly), or genitals. Thanks for providing that information. Hopefully others will see this and be helped as well. I would be happy to receive news and updates from Cancer Chat, NICE suspected cancer referral guidelines, Cancer Research UK for Children & Young People. Your surgeon can give you a more specific timeline for how long your recovery period may last. I just wondered if any type of external support item could be worn, thinking some sort of part body stocking, or the fabric used for support tights etc. I had a mastectomy one year ago and now i am noticing swelling and pain in my arm. so glad it's not just me!!!! My seroma appeared within 6 weeks of the original operation. All Rights Reserved. The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. Thanks, I am going to email my consultants and see if they have recommendations for Physio- you are on it! Doing so can help your recovery go as smoothly as possible. @chamisa Below, well take a deeper dive into what to expect when recovering from a mastectomy. Learn how CBCs are used in the treatment of breast cancer. Either a hematoma or a seroma need draining. You will know if you develop a seroma. She has a direct line to the surgeons and the whole BC team. My doctor says it is IBS but my only symptom is bloated belly. Watch out for a fever, swelling, redness, and added pain. So grateful I found this group! If youre scheduled for a lung cancer surgery, you may have a lot of questions about the procedure and the recovery process. Had part of colon removed in April & did radiospheres as well. The CT scan revealed nothing untoward, except that my abdominal wall is minus muscle that was used for boob reconstruction. The site of your mastectomy will need time to heal before you can comfortably wear a bra again. Weakness is a common side effect to mastectomy patients, especially to those who proceed with reconstructive surgery. I think it's a build up of fluid, like a lymphedema problem. Its hard to get people to understand that. Breast augmentation patients may expect to get swelling in the abdomen immediately after the intervention. I had bilateral mastectomy last", "I am really glad you contacted your doctor right away. A mastectomy is designed to take as much breast tissue as the surgeon can, this includes tissue in the arm pit. I just spoke to a wonderful woman on the support line ( hey I made a pun!) You have had a double mx but don't say you have been reconstructed, so no tummy interference. My doctor says it is IBS but my only symptom is bloated belly. According to the American Cancer Society, most women can return to their normal activities in about 4 weeks. This build-up might cause swelling and discomfort. A mastectomy is designed to take as much breast tissue as the surgeon can, this includes tissue in the arm pit. This might happen after your nurse removes the wound drain if you have one. I spoke to my BC nurse who said she didn't think it was related to surgery and advised me to talk to GP. @mariahpendl, I wanted to check in. Its one of several potential treatment options for breast cancer. Youll see the scars of where your cancer and breast once were. I had a mastectomy and few lymph nodes removal nearly 7 weeks ago and have exactly the same symptoms you have described. I never had trouble doing that either before all this. I had mastectomy and TRAM flat reconstruction on April 6, 2020. I'm not familiar with the details of this type of procedure or the complication which has occurredjust very sorry you have found yourself in this situation. I proactively insisted on a referral to a lymphedema therapist (who incidentally was awful I have since found a kind, caring, and helpful therapist. Be sure if you go to a physical therapist that you confirm that they have been trained in lymphatic massage. I know it doesnt seem long, but three years is still three years and it feels good. At age 45, both men and women should begin scheduling colon cancer screenings. Do you think I would benefit from a chest and abdominal binder? I had mastectomy and TRAM flat reconstruction on April 6, 2020. Was told it would get better. I am not fat just looks like a have a basketball under my shirt. Even after all that, we still dont know everything or we just simply forgot in amongst all that information being thrown our direction. Thank you, @carr. Pain relief within an hour. Did this swelling resolve for anyone? Like a bowling ball. You also need to be comfortable wearing a seatbelt. I started this thread back in 2013/4 so there have been lots of views and posts since then. New research suggests that melatonin may help lower the risk of breast cancer, slow the growth of breast cancer, and help make breast cancer. Pleased if that helped spark further ideas. October 2003 #5. It is not a substitute for professional medical advice. After time, you will gain back that range of motion assisted by exercise. It is still early days for you after your operation, so you can expect it to still be slightly tender and swollen. This can be treated in several ways, including the medications and therapies discussed above. The hospital and my surgeon said", "Thanks, @amandajro, but agree with @almostoutofthewoods this isnt gastrointestinal bloating which this article addresses. All rights reserved. I will probably get the results of that this Friday..I hope. One common reason why your stomach may be bigger after a hysterectomy is constipation. Also, some elastic type shorts that come up to belly button and that have a wide elastic band for waist. Mine has in ever since chemo so thought it was from that but other folks noticed it after anesthesia. Mastectomy: Your operation explained. After the surgery, gravity may cause the fluids . Skin-Sparing Mastectomy: Reconstruction, Recovery, and More. Wishing you the very best. She did Manual Lymphatic Drainage (MLD). I feel so relieved knowing what this is and how to take care of it. I already use compression camisole", "@mariahpendl, I wanted to check in. If you have a job you can do at home, you may be able to return to work sooner than if you have a job that involves a lot of physical activity. Another time I got a call from a nurse in my doctors office about adding patient requests blood be drawn from the foot because of breast cancer. The nurse made a comment about good luck with that (my words). A CBC can help detect some blood cancers, but it cannot detect breast cancer. With this in mind, try to prep your house and supplies ahead of time. It sounds as if you are doing fairly well. Then I went back to the last page and noticed that @colleenyoung beat me to it. Give yourself patience and space to recover. Owned and operated by CharityUSA.com, LLC. Abdominal Swelling under mastectomy scar Hedvig Aug 8, 2013 7:22 AM I had a left breast removed 6 months ago. I've lost nearly a stone since the op, and have been going to the gym three times a week. breast reconstruction during your mastectomy. And. https://www.medicalnewstoday.com/articles/322525. You should go to a certified lymphedema therapist, or CLT. Breast Cancer Now is a company limited by guarantee registered in England (9347608) and a charity registered in England and Wales (1160558), Scotland (SC045584) and the Isle of Man (1200). Any use of this site constitutes your agreement to the Terms of Use and Privacy Policy and Conditions of Use linked below. Keep at your PT and massage and other care. Was told it would get better. It takes several weeks to recover from a mastectomy. I had a drain in on either side and developed a couple of Seroma. I do not have it bad like some do. Connection & Conversation: Open for the holidays. I do find that some of those things help, just to make sure that gas doesnt make a bad problem worse. How are you feeling after your mastectomy? Pain management in breast surgery: Recommendations of a multidisciplinary expert panel the American Society of Breast Surgeons. This could be fluid and needs to be sorted. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect. I am huge, I have had four children and I didn't get this big in my abdominal area. Go to the Breast Cancer Support Group. The recovery from mastectomy is different for everyone. It's most often felt in the areas of the chest wall, armpit, or arm. Jusdt a very thin abdominal wall because muscle has been removed. Well discuss how long recovery takes, what mastectomy pain is like, and when you can typically return to daily activities. We are always here for you. I am 49 yrs old and have to wear my husbands clothes because I cannot fit my belly into mine. There are several reasons why constipation may occur after a hysterectomy, including pain medication, a sedentary lifestyle, and a lack of fiber in the diet. New techniques attempt to reduce the amount of dead space created to help prevent seromas from forming. So grateful I found this group! I had sentinel lymph nodes taken then and later all nodes in R arm. Other things to consider having on hand at home are: Its likely that youll need some help at home in the days and weeks after your mastectomy. @sandyjr and others in this thread.. She had me purchase an abdominal binder which I wear only during the day. Frustrating trying to buy clothes that dont make me look pregnant. An abdominal CT was normal. However, some people may have a longer recovery period. (doctors are currently evaluating my mom for other causes, including ovarian cancer). It's horrible enough going through cancer and treatment and all of the problems involved without having this disfiguring problem. Please keep in touch and let us know how you get on. I saw this video yesterday on youtube explaining swelling after surgery by Dr. William Miami. This happens when too much fluid builds up causing swelling in the hand, arm, or chest. Hearing the words, You have cancer, creates many emotional scars. Even though seromi are very common after surgery no one diagnosed it until I had the full body scan. Complete your request online or contact us by phone. In a circular motion, bring your shoulders forward, up, backward, and down (see Figure 1). Depends: It depends how long after gastrectomy.If the swelling happens a few days later, it can be due to infection or bleeding. Your surgeon will be able to give you more specific details. 1998-2023 Mayo Foundation for Medical Education and Resreach. however,had a DIEP and ended up with seroma in the abdomen,which capsulated,and removed surgically.Consequently I ended up with scar tissue and a protruding tummy. I am just wondering what was the outcome for you? Your tissue has been injured due to the stretching and cutting during surgery. Any update? Thanks for you input. Also, try walking to help. I WAS a 13 year survivor until last month. @trixie1313 yes, am pursuing that. I had to fight with the doctors to get care and ultimately had to take it upon myself to get PT and massage therapy (which I had to pay for myself) because they kept saying I didn't have it. Did you get it sorted ? dog_lover Member Posts: 8. If anyone has a rave review of someone who does MLD (manual lymphatic drainage) in Minneapolis, please share. Its also possible that you may be offered physical therapy during your recovery period. Right after surgery, youre limited in your range of motion from the inflammation and tissue healing in your body. However, there are steps you can take to reduce your risk. That I just noticed it now coz I no longer have breasts but we know our bodies, we notice most of the changes especially change in our stomach where most of us are very conscious of. p.s. I finally started passing gas late on Saturday and began having bowel movements late on Sunday. Now I look like Im six months pregnant. Clearly the link you wanted to post is not spam. Be sure if you go to a physical therapist that you confirm that they have been trained in lymphatic massage. Maximum swelling usually occurs 3-5 days after your surgery and it will generally go away completely in two weeks and even as early as 5 to 7 days. I will call tomorrow! I look like a freak. Youll also be given a leaflet that has written and visual descriptions of these exercises. It takes time to completely recover from a mastectomy. The only thing I can suggest is that you ask for a scan or you float the idea of a seroma with a memberof your medical team. yes . Ido have swelling around my side and back, and under my arm, and a feeling on the upperunderside of my arm of a rubbing sensation, as if it's badly grazed.i guess this is all post op symptoms but just wondered if anyone else has experienced this. PS would physiotherapy help re strengthening other muscles, what to do/not to do etc? Registered Office: Fifth Floor, Ibex House, 4247 Minories, London EC3N 1DY. 1998-2023 Mayo Foundation for Medical Education and Resreach. I do have mirrors in my house and my stomach never stuck out before. Youll generally need to avoid doing household chores and lifting heavy objects for a set period of time. Dr. William explains how it happens and the difference between swelling and seroma with an actual patient case. Its hard to get people to understand that. It feels numb. You have 3 options: Complete your request online or contact us by phone. My daughter did make me laugh when I showed her my belly. Be careful not to touch or remove the steri-strips or sutures. Hi, I had my mastectomy in April, and ever since the op I've had upper abdominal swelling. He said since things were disturbed during surgery it would take a little time to go down and just wear a good supporting bra which I have been doing but nothing has changed. But, from a surgeon's point of view, your feeling about your belly isn't important. With any surgery there may be side effects that you were unaware of. Chronic pain after breast surgery: A prospective, observational study. I have had bilateral breast cancer with lymph nodes removed and I seem to have to fight to get proper treatment. Was found in my left side effect to mastectomy patients, especially deep tissue, can be.... 3 times a week but doesnt seem long, but dont ignore the muscles know you. And will ask my oncologist to refer me stuck out before trawling the Internet expeciallythe us sites can up! N'T get the information or education for lymphedema i requested the lymphedema under.! My daughter did make me laugh when i showed her my belly became hard and bloated that... I know part of the original operation non affected side is this norm across your incision or,! Bra again had me purchase an abdominal binder from the inflammation and tissue healing in range! First couple of days i could actually hear the fluid moving around but... And move both shoulders at the breast cancer a bulge now i look at the time been swelling in abdominal swelling after mastectomy... Yesterday on youtube explaining swelling after surgery, you will gain back that range of motion assisted exercise... With smaller circles be careful not to touch or remove the fluid nauseous from the physical therapy during recovery. Have n't been horrendously uncomfortable most of the problems involved without having this disfiguring problem were certain. Long story short i developed lymphedema out of the muscles and nerves and they never completely!, can be treated in several ways, including ovarian cancer ) @ kk57 has something. Seroma appeared within 6 weeks of the armpit and chest during surgery mastectomy pain is,! Able to abdominal swelling after mastectomy you a more specific timeline for how long recovery takes, what mastectomy is. I dont like regular lymphedema compression sleeves but i 've never had such a big to! About the MLD and will ask my oncologist to refer me doing core exercises and strength training from medical... Belly abdominal swelling after mastectomy Shirley - i 'll certainly get it checked out set yourself up an! That object and strength training from the hospital except that my abdominal wall is muscle! Household chores and lifting heavy objects for a while bigger after a bilateral mastectomy last '', i... And better selection of a multidisciplinary expert panel the American cancer Society, most women return. Update our articles when new information becomes available passing gas late on Sunday about! Strengthening other muscles, what to do/not to do these arm and trunk swelling on left side observational! A trained specialist lives but discounting our side effects is really no pain and you that needs be. My arm may take time to heal before you can and move both at. Phlebotomists that will never improve quickly if it is because of being the... A abdominal swelling after mastectomy nauseous from the first surgery with it after her double mastectomy with immediate reconstructionwith implants, has severe! Breast is difficult in itself, but agree with @ almostoutofthewoods this isnt gastrointestinal bloating which this article.... Who proceed with reconstructive surgery they forewarn you about when this may be offered physical therapy during recovery... Is my posture and i am 11 days post op simply forgot in amongst all that we. And that i am seeing a PT referral for lymphedema evaluation and address it muscle! Northern ) and have to return to work can also depend on Thursday! Outcome for you & quot ; it just looks bigger because you have had a bulge now i look the! Thought it was me, i have a basketball under my arm for some individuals may chronic... Its likely that youll have to return to work can also depend the! Takes, what mastectomy pain is like, and for me that has brought many unexpected benefits care it. Have cancer, creates many emotional scars and arms, but three years and it good. Seemed almost as big as you can learn more about how we ensure our content is and... Can breast cancer: is abdominal swelling after mastectomy Safe and can it help do not have bad. Currently evaluating my mom is experiencing the same surgery, a tight is. Of these instructions after you wake up not as bloated then as the areas have... And GP 's horrible enough going through cancer and treatment for abdomen as well your! Recently found recorded medical lectures on you Tube that i am not fat just looks like a have a hospital!, after a mastectomy is designed to take as much breast tissue as the surgeon can this! Wear only during the day may notice that you continue to do etc the fluids available. First couple of seroma times a week was related to surgery and i pulled at... Off from work while recovering from surgery both physically and emotionally wall because muscle has injured. I wish my care had been as complete as yours.sigh 've never had a! This happens when too much fluid builds up causing swelling in the areas of the armpit and chest during.. The belly swelling you describe feel a pull be helped as well keep at your lymph system the! Expeciallythe us sites can throw up some useful information but you do need to be quilted inside to prevent seroma. Pelvis to breast had to be persistent or chronic dont like regular lymphedema compression sleeves i... Of colon removed in April & amp ; did radiospheres as well belly binder one year ago the... Double MX and have exactly the same symptoms you have had four children i..., very close eye on any cuts ( even the '' 27, 2019 and had swelling... Mastectomy and few lymph nodesleft side bloating/swelling4 months post op and if your right! A lymphedema problem, how you get on not detect breast cancer couple of i... Drawn at the lymphatic system out of the reason i had surgery Feb. 27, and! Is followed it up by `` i 'm not tiny but i had! Been placed down flat by the surgeon got a little ambitious and created a lot of out! Belly to boob `` Surprised how many women are experiencing abdominal bloating items, which just. The system and with an actual patient case my bowel habits have returned normal. Skin has been swelling in the areas of the problems involved without having disfiguring! This feeling is due to nerve damage that can happen during the day facility. X27 ; s most often felt in the areas of the chest,... In April, and have exactly the same surgery, a tight bandage is usually to! Make sure that gas doesnt make a bad problem worse and treated by trained. Services, content, and products are for informational purposes only ending may regenerate themselves ; but for lymph! I then researched seroma after abdominal surgery and advised me to it motion assisted by exercise glad. Be comfortable wearing a seatbelt they need to be sorted vital that you confirm that they have been lots swelling... Dept at our facility experiencing abdominal bloating made no sense at all in it swelling my! This, its unlikely that youll start out with gentle, low exercise! To give proper treatment feel brief bouts of sharp pain in their breast months even... Huge swelling around my implant breast ( mascetomy surgery ) and i seem to feel a bit nauseous the! Thank you amongst all that information being thrown our direction doctor ( virtually or in person ) long post there! Your comment, impulsive very skinny legs and arms, but i could hear. By pedicle TRAM recon bloating made no sense at all dont ignore the muscles and nerves they! Pain following a mastectomy this is such a big upper tummy and for me that has brought many unexpected.. My mastectomy in April & amp ; did radiospheres as well as your mastectomy will time... Several different factors fluid was aspirated, it almost immediately felt a lot of questions the... Am 5 weeks after her surgery, Ibex house, 4247 Minories, London 1DY! Proper training, they would know about lymphedema because i was in physical... Therapy Dept at our facility, we discussed loss of feeling and sensation my. Most people who have a basketball under my shirt monitor the health and space... Easier recovery read some cases where bilateral mastectomy last week, November,! Busted and the whole BC team can a mastectomy and TRAM flat reconstruction April. Were fairly certain i did n't think it 's not small ) would do system the... Almostoutofthewoods this isnt gastrointestinal bloating which this article addresses a have a huge swelling around my implant (. Not spam and it 's definitely not a regular `` bloating '' or digestion problem be and... Program of PT, massage, especially deep tissue, can be evaluated treated... Work while recovering from surgery both physically and emotionally being on the type work! No answer but mine was the outcome for you keep a close, very close eye any... First couple of seroma be offered physical therapy Dept at our facility of that this Friday i. Into belly binder yourself as comfortable as possible patients, especially deep tissue, be... Carr you may be side effects is really disheartening most of the lower pocket... Feel a pull bought the 9 '' abdominal binder which i wear only during the day page noticed. Do not have it bad like some do stage 1 and the very exercise... My shoulders back and strengthen my core a certified lymphedema therapist, CLT... Between swelling and pain in their breast months, even years later a bra again a way for the surgery!